Monday, September 13, 2010

So how did we get here? Last summer my then 14 year old was strong and healthy. She played softball and field hockey all summer and was probably in the best shape of her life. She started high school. Three days later she came down with flu like symptoms, but her fever was still pretty low. Off we went to the medical clinic - it was labor day weekend and I wanted to get ahead of it so she wouldn't have to wait the 3-day weekend. The took a strep test - negative, and a flu test. They gave her tamiflu while we waited for the results. (it was swine flu season)


By the next week she was really sick. VERY high fever, headaches.... flu test came back negative. Back to her doctor who declared it a virus and sent us home. Fever continued. Back to doctor who gave us antibiotics. Fever continues. Back to doctor who ran blood tests for a bunch of things. Fever continues, tests all negative. Her liver enzymes elevate. We get sent off to the gastroenterologist who proclaims it's a virus and sends us home. The fever finally subsides after 18 days and her liver function returns to normal. She gets back to school but remains tired and without appetite. She's lost weight. Back to doctor - more bloodwork and he declares she has hep A. Tells us it will linger for months. OK - months go by - still tired, no appetite. weight loss. Now complains of trouble swallowing. Back to doctor who sends us back to gastro. Lots more bloodwork - suspects celiac. Nope. bloodwork shows elevated c-reactive protein and sed rate, and mild anemia. Now he thinks autoimmune - crohns. Call the pediatrician again - he assures us it isn't cancer and that it must be crohns. Off for more tests.

She endures upper gi xray series, endoscopy and colonoscopy. The gastro is surprised - no evidence of crohns. But he mentions off-hand, that there looks to be an infected node in her groin. Meg had never said a word.

Call to pediatrician - doesn't want to see her and refers us to surgeon.

Finally, the surgeon takes a look at Meg and says they will help her. Surgery and they'll put her in the hospital until they figure out what's going on. He orders CT scan (finally!)

The day of surgery we learn there are other enlarged nodes showing up on the pelvic CT.

Surgery - he calls in the oncologist.

They biopsy, run a slew a blood tests.... then we get a diagnosis.

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