Monday, July 19, 2010

Monday morning- ugh!

I am so damned tired. I need to get up and every part of my body is aching. I feel guilty even saying that given what my daughter is feeling. I don't think I've had a good night's sleep in weeks and it is all catching up to me. People tell me I need a break. How on earth do you take a break when your child has cancer? I can't take a day off from work because I am barely hanging on to my job and I've used up all my leave time with clinic visits, hospital stays, etc. I can't even have a drink before bed - I need to stay alert and able to rush to the hospital on a moment's notice.

Saturday, July 17, 2010

Here goes....

Ok, there's caringbridge, and facebook... why start a blog? Why not, I guess? I needed a place to write about how it affects me - the mom, to cope with a child with cancer.

This is the place where I can come and post what I wouldn't put anywhere else. 
My daughter Meg was diagnosed in April, 2010 with Anaplastic Large Cell Lymphoma. A big word to say that she has cancer. Advanced, aggressive cancer. I refuse to capitalize it. I know some people call it the big c... but I can't ever give it that much reverence by capitalizing it.